Experiences of diagnosis, stigma, culpability and disclosure in male patients with hepatitis C virus : an interpretative phenomenological analysis

Krzeczkowska, Anna and Flowers, Paul and Chouliara, Zoe and Hayes, Peter and Dickson, Adele (2019) Experiences of diagnosis, stigma, culpability and disclosure in male patients with hepatitis C virus : an interpretative phenomenological analysis. Health (United Kingdom). ISSN 1363-4593 (https://doi.org/10.1177/1363459319846939)

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Abstract

The current study aimed to explore the lived experience of patients with hepatitis C virus infection. Semi-structured interviews were conducted with seven male participants living with hepatitis C virus and were analysed using interpretative phenomenological analysis. Two master themes were identified: (1) diagnosis and the search for meaning and (2) impact of stigma on disclosure. Participants reported fears of contaminating others, feelings of stigma and concerns of disclosing the condition to others. Response to diagnosis, stigma and disclosure among the participants appeared to be interrelated and directly related to locus of blame for virus contraction. More specifically, hepatitis C virus transmission via medical routes led to an externalisation of culpability and an openness to disclosure. Transmission of hepatitis C virus as a direct result of intravenous drug use led to internalised blame and a fear of disclosure. The inter- and intra-personal consequences of hepatitis C virus explored in the current study have potential implications for tailoring future psychological therapy and psychoeducation to the specific needs of the hepatitis C virus population.

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