Clinical neuropsychology in the management of myotonic dystrophy

Graham, Christopher D. and Kemp, Steven and Radakovic, Ratko and Kapur, Narinder (2018) Clinical neuropsychology in the management of myotonic dystrophy. Muscle and Nerve, 57 (5). pp. 701-704. ISSN 0148-639X (https://doi.org/10.1002/mus.26085)

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Abstract

In a previous issue of Muscle & Nerve, we outlined how psychological processes interact with biological and social factors to affect quality of life in muscle disorders.1 We then described the use of psychological interventions—focusing mainly on talking therapies—for improving quality of life, mood, and general functioning. As in the case of well-cited reviews describing the clinical management of myotonic dystrophy,2, 3 neuropsychological assessment and cognitive rehabilitation were not described in detail in our article. The work by Fujino et al.4 in this issue of the Journal suggests that, in the care of patients with myotonic dystrophy (type 1) at least, our lack of attention to cognitive rehabilitation may have been an oversight. Therefore, in this editorial, we discuss the clinical implications presented by Fujino et al.,4 taking the opportunity to describe the potential for cognitive rehabilitation for myotonic dystrophy.