Parent's with incurable cancer : 'nuts and bolts' of how professionals can support parents to communicate with their dependent children
Semple, Cherith J. and McCaughan, Eilís and Smith, Rachel and Hanna, Jeffrey R. (2021) Parent's with incurable cancer : 'nuts and bolts' of how professionals can support parents to communicate with their dependent children. Patient Education and Counseling. ISSN 1873-5134 (https://doi.org/10.1016/j.pec.2021.06.032)
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Abstract
Objective: Parents with incurable cancer are often uncertain how, what and when is best to tell their children about their poor prognosis and prepare them for the actual death. Despite parents' desire and need for support from health and social care professionals (HSCPs), this is often lack- ing. HSCPs feel ill-equipped, identifying a need for an evidence-based communication frame- work for professionals to use in practice, promoting parent-child communication at end of life. Methods: A systematic process, involving a systematic review and data from 76 semi-structured, face-to-face qualitative interviews from three participant populations, including HSCPs (n=32), bereaved parents (n=21) and funeral directors (n=23) were triangulated. This informed the devel- opment of the ‘Talking, Telling and Sharing’: End of life framework (6W Grid), guided by an expert group. Results: An evidence-based, theory-driven communication framework has been developed. This provides a mechanism for HSCPs to proactively and directly engage with patients, addressing their parent-child communication concerns. Conclusion: Clear, evidence-based communication frameworks can enhance patient-provider communication in practice, particularly around sensitive and complex issue. Practice Implications: There is a need for HSCPs to encourage parents to start these difficult conversations soon after receiving the poor prognosis, to avoid crisis management when the ill- parent is actively dying or throughout the immediate bereavement period.
ORCID iDs
Semple, Cherith J., McCaughan, Eilís, Smith, Rachel and Hanna, Jeffrey R. ORCID: https://orcid.org/0000-0002-8218-5939;-
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Item type: Article ID code: 77164 Dates: DateEvent16 July 2021Published16 July 2021Published Online27 June 2021AcceptedSubjects: Medicine Department: Faculty of Humanities and Social Sciences (HaSS) > Social Work and Social Policy > Social Work and Social Policy Depositing user: Pure Administrator Date deposited: 22 Jul 2021 09:31 Last modified: 13 Nov 2024 22:11 URI: https://strathprints.strath.ac.uk/id/eprint/77164