User-designed dementia care pathways : a disruptive approach to mapping dementia support services

Carey, Daniel and Tennant, Andy and Rodgers, Paul and Dodd, Katie (2017) User-designed dementia care pathways : a disruptive approach to mapping dementia support services. Design Journal, 20 (Sup. 1). S2534-S2550. ISSN 1756-3062 (https://doi.org/10.1080/14606925.2017.1352766)

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Abstract

This paper reports on the first author’s ongoing Arts and Humanities ResearchCouncil (AHRC) funded PhD research exploring the potential for disruptive designinterventions within the context of health and social care. This paper describes anongoing project to map the services available to people with dementia and theircarers, with a specific emphasis on the services available before the patient receivesa formal diagnosis of dementia. Many service users are simply unaware of the support available to them, and are left to navigate their own paths through the unfamiliar and intimidating landscape of dementia services. This paper reports on the development of two tools for use by carers, patients, and dementia service providers. These tools offer innovative ways of enabling service users to visualise the pathway of their current and future care, whilst also allowing service providers to identify the strengths and weaknesses in the type of support they provide.

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