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Seeing the invisible children and young people affected by disability

Banks, Pauline and Cogan, Nicola and Deeley, Susan and Hill, Malcolm and Riddell, Sheila and Tisdall, Kay (2001) Seeing the invisible children and young people affected by disability. Disability and Society, 16 (6). pp. 797-814. ISSN 0968-7599

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Abstract

This paper presents a brief review of literature relating to children in families with a disabled member, including the 'young carers' and disability studies literature, and relevant works from the social psychology and sociology of childhood. Key themes identified in the literature are then illustrated by findings from two exploratory research studies that sought to explore the experiences and service needs of children in families with a disabled member, within two Scottish areas. The authors suggest that, although young people affected by disability in the family, including young carers, face significant problems, particularly in socially disadvantaged areas, there are other issues that need to be addressed. Alternative conceptual frameworks are proposed, which challenge the dominance of the young carers research paradigm.