A qualitative exploration of the healthcare challenges and pharmaceutical care needs of people with Parkinson's and their caregivers

Jacob, Sabrina Anne and Wong, Zhi Jean and Cheong, Wing Loong and Chong, Elizabeth Yi-Chuen and Wong, Yin Xuan and Lew, Sara Lai Heong (2021) A qualitative exploration of the healthcare challenges and pharmaceutical care needs of people with Parkinson's and their caregivers. International Journal of Clinical Pharmacy. ISSN 2210-7711 (https://doi.org/10.1007/s11096-021-01312-4)

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Abstract

Background: People with Parkinson's are at higher risk of healthcare and pharmaceutical care issues. Objective: To determine the healthcare challenges, pharmaceutical care needs, and perceived need of a pharmacist-run clinic by people with Parkinson’s and their caregivers. Setting: Malaysian Parkinson's Disease Association Method: A focus group discussion adopting a descriptive qualitative approach was conducted involving people with Parkinson's and their caregivers. A semi-structured interview guide was used to determine the challenges they faced with their medications and healthcare system, their pharmaceutical care needs, and their views on a pharmacist-run clinic. Data was thematically analysed. Main outcome measure: Healthcare challenges faced by people with Parkinson's and caregivers along with their pharmaceutical care needs and perceived need of a pharmacist-run clinic. Results: Nine people with Parkinson's and four caregivers participated. Six themes were developed: 1) "It's very personalised": the need for self-experimentation, 2) "Managing it is quite difficult": challenges with medication, 3) "The doctor has no time for you": challenges with healthcare providers, 4) "Nobody can do it except me": challenges faced by caregivers, 5) "It becomes a burden": impact on quality of life, and 6) "Lack of consistency could be counterproductive": views on pharmacist-run clinic. Conclusion: The provision of pharmaceutical care services by pharmacists could help overcome issues people with Parkinson's face, however there is a need for them to first see pharmacists in their expanded roles and change their limited perception of pharmacists. This can be achieved through integration of pharmacists within multidisciplinary teams in specialist clinics which they frequent.

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