Advanced kidney disease patient portal : implementation and evaluation with haemodialysis patients

Meiklem, Ramsay and Stevenson, Karen and Richarz, Sabine and Kingsmore, David B. and Bouamrane, Matt-Mouley and Dunlop, Mark and Thomson, Peter (2021) Advanced kidney disease patient portal : implementation and evaluation with haemodialysis patients. In: INTERACT 2021 - 18th IFIP International Conference on Human–Computer Interaction, 2021-08-30 - 2021-09-03.

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Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n=26). Patients' feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.


Meiklem, Ramsay, Stevenson, Karen, Richarz, Sabine, Kingsmore, David B., Bouamrane, Matt-Mouley, Dunlop, Mark ORCID logoORCID: and Thomson, Peter;