Citizen-centred Data Sharing : What Does It Mean and Why Do We Need It?

Rooney, Laura (2018) Citizen-centred Data Sharing : What Does It Mean and Why Do We Need It? Digital Health & Care Institute, Glasgow.

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Abstract

Welcome to the DHIs new blog series on the 'ins and outs' of citizen-centred data sharing! This topic is very apt at the moment with the new General Data Protection Regulations coming into effect in May as well as countries such as Norway, currently in the process of implementing a national identifier to link all of a person’s data. This blog series will give you an insight into the changing nature of data sharing as we advocate for person-centred data sharing methods. I will also use this opportunity to exemplify various European regions which have succeeded in this domain and can share data seamlessly across many different boundaries using national identifiers. Finally, i will finish this series with a Scottish perspective to understand how our country can take key learnings from other European regions.