Review of Evidence on Personal Outcomes Relevant to the Carers (Scotland) Act 2016

Miller, Emma (2017) Review of Evidence on Personal Outcomes Relevant to the Carers (Scotland) Act 2016. Scottish Government, Edinburgh.

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This review identified several long-term programmes on outcomes focused planning, some specific to carers, based in England, Wales, Canada, Sweden and Scotland. Key features of early work by the Social Policy Research Unit (SPRU) at York University influenced later work in Scotland and include adoption of similar frameworks for service users and carers, the inclusion of both process and quality of life outcomes, and the exchange model of assessment, which incorporates the views of service users, carers, practitioners and agencies in negotiating and agreeing outcomes. The SPRU programme adopted ‘whole systems thinking’ to reflect awareness that resolution of many health and social problems, and achievement of outcomes for people, lie beyond the ability of any one practitioner or agency. It was acknowledged that systems are complex networks of inter-relationships, which links to the recent emphasis on complex adaptive systems highlighted in the implementation paper that sits alongside this paper. A ‘paradigmatic leap’ in service designed and delivery is required. Literature on outcomes for young carers is more limited but growing and identifies long-term impacts of substantial caring on development and opportunities into adulthood. Separate work is underway focusing on young carers relating to the Act.