What matters to prostate cancer patients, carers and clinicians? Using consensus methods to identify Patient Reported Outcome Measures (PROMs) tools for use in clinical practice

Dunlop, Emma and Bennie, Marion and Laskey, Jennifer and Clarke, Julie and Baillie, Kelly and Mueller, Tanja (2019) What matters to prostate cancer patients, carers and clinicians? Using consensus methods to identify Patient Reported Outcome Measures (PROMs) tools for use in clinical practice. In: Scottish Oncology Pharmacy Practice Group (SOPPG) 2019, 2019-05-18 - 2019-05-18, Dunblane.

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    Abstract

    Introduction: Patient Reported Outcome Measures (PROMs) can improve overall survival by providing clinicians with more information to make treatment decisions1. The Cancer Medicines Outcomes Programme (CMOP) aims to determine outcomes of cancer medicines and test the feasibility of using PROMs in routine practice. This study aims to identify the most appropriate PROMs tools that capture prostate cancer patients’ / carers’ and clinicians’ priorities regarding treatment impact on Quality of Life (QoL). Methods: PROMs tools were identified (n=30) and the areas covered assembled into a framework of domains (n=9) and domain elements (n=70). A consensus methods approach was taken where clinicians participated in online questionnaires (3 stage eDelphi), ranking importance of QoL domains / elements. Patients / carers participated in either Nominal Group Technique (NGT) discussions at support groups or in questionnaires at clinics, and rated elements of importance using a Likert scale. Results were analysed and mapped to the PROMs tools to identify the best fit. Results:N=53 elements were important, 58.5% (n=53) of them mutually so. The NCCN Distress Thermometer & Problems List with EQ-5D-5L best met priorities. Conclusions: Clinicians and patients/carers have common priorities regarding treatment impact on QoL. Consensus methods were useful in establishing the most appropriate PROMs tool(s) for. Next steps involve stakeholders informing the design of a patient app and a clinician dashboard for the collection of PROMs data.