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Understanding the lived experience of stroke : examining post-stroke self-management strategies using a model of successful ageing

Dryden, Jennifer Mccallum and Dixon, Diane and Grealy, Madeleine and Quinn, T. (2013) Understanding the lived experience of stroke : examining post-stroke self-management strategies using a model of successful ageing. In: British Psychological Society Division of Health Psychology Conference, 2013-09-11 - 2013-09-12.

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Stroke survival rates in the UK are improving. An increasing number of stroke survivors live with the long-term consequences of stroke, which can include a wide range of disabilities. Stroke survivors learn to manage their lives within the constraints imposed by their disabilities, but some manage better than others. Currently we have limited understanding of how stroke survivors manage and the specific self-management strategies that they use. The Selection, Optimisation and Compensation (SOC) model describes three types of strategies used to adapt following a loss in ability, such as is common after stroke. This study will employ the SOC model to identify the self-management strategies adopted by stroke survivors. Semi-structured interviews will be conducted with 40 stroke survivors, recruited from local NHS stroke services. Participants will be asked about 80 activities and body functions, indicating which they find difficult post-stroke and if they have changed the way they perform these since having a stroke. Analysis will focus on identifying strategies from within the interview text and matching these to the theoretical definitions of SOC using discriminant content validation. Similar strategies will be collated, resulting in a list of common, stroke-specific Selection, Optimisation and Compensation strategies. We aim to use this data to develop a self-report measure of SOC strategy use appropriate for the stroke population. This measure will then be used to examine the relationship between strategy use and outcome in stroke survivors, with a view to promoting adaptive strategies and developing interventions to target maladaptive strategies in the future.