A hierarchy of personal agency for people with life-limiting illness

Campbell, Ann and Carrick, Lorna and Elliott, Robert (2013) A hierarchy of personal agency for people with life-limiting illness. American Journal of Hospice and Palliative Medicine. pp. 2-9. ISSN 1049-9091

[img] PDF (Campbell_Carrick_Elliott 2013 Hierarchy of Personal Agency)
Campbell_Carrick_Elliott_AM_J_HOSP_PALLIAT_CARE_2013_1049909113503704.pdf
Final Published Version
Restricted to Registered users only
Download (249kB) | Request a copy from the Strathclyde author
    [img]
    Preview
    		 PDF (Campbell-Carrick-Elliott Personal Agency in Life Limiting Ilness)
    Campbell_Carrick_Elliott_Personal_Agency_Life_Limiting_AJHPM_Author_final.pdf
    Accepted Author Manuscript
    License: Creative Commons Attribution-NonCommercial-ShareAlike 4.0 logo
    Download (509kB)| Preview

      Abstract

      The purpose of the study was to discover how individuals diagnosed with a life-limiting illness experienced themselves as agents, even in the face of death. In this qualitative, multiple case study design four female outpatient hospice patients with terminal illnesses received humanistic counselling to explore their experiences of themselves and their illness. A graded set of 8 levels of personal agency emerged from analyses of the texts of their sessions, ranging from a passive, objectified Non-agentic mode to an active, autonomous Fully Agentic mode, with multiple subcategories representing further gradations within levels. Our results are consistent with guidelines for supportive and palliative care with advanced cancer, which specify that dying patients’ needs be assessed and that they be involved in decisions about their care.

      Author(s):Campbell, Ann, Carrick, Lorna ORCID logoORCID: https://orcid.org/0000-0003-4178-7973 and Elliott, Robert ORCID logoORCID: https://orcid.org/0000-0002-3527-3397
      Item type:Article
      ID code:46415
      Keywords:hospice care, quality of life, psychological care, life-limiting illness, palliative care, personal agency, Psychology, Oncology, Applied Psychology
      Subjects:Philosophy. Psychology. Religion > Psychology
      Department:Faculty of Humanities and Social Sciences (HaSS) > School of Psychological Science and Health > Counselling
      Depositing user: Pure Administrator
      Date deposited:07 Jan 2014 11:38
      Last modified:14 Oct 2019 01:28
      Related URLs:
      URI:https://strathprints.strath.ac.uk/id/eprint/46415
      Export data:
      CORE (COnnecting REpositories)